Patient-reported outcomes (PROs) are a type of patient-generated data that can often provide clinically-meaningful insight into screening, diagnosis, and response to treatment. In response to changing healthcare and policy environments, health systems are beginning to prioritize the electronic capture and presentation of PROs, leveraging health information technology (i.e., ePRO systems) to transform healthcare and improve patient and population health. Yet a more comprehensive and integrated approach is necessary to understand and address diverse uses of ePRO systems within complex healthcare organizations. Not only must ePRO systems adapt to the needs and constraints of large healthcare organizations to remain sustainable, they must be designed with the flexibility to facilitate effective ePRO data collection and review across the patient’s care continuum. Such an approach will ensure that clinicians hear their patients’ “PRO voice” to promote mutual understanding, shared decision making, and use of collective PRO data to support quality of care. Workshop leaders experienced in the research and application of electronic patient-reported outcomes tools across health systems will share their perspectives and design principles for ePRO systems based on: 1) planning for ePROs at the health system level, 2) designing tools for ePRO data reporting and visualization, 3) deploying ePROs across diverse clinical environments, and 4) evaluating and sustaining ongoing use of electronic ePRO systems. The leadership team represents multiple areas of expertise (e.g., health services research, human-centered design, information systems, systems engineering, health and clinical informatics, implementation science) and diverse healthcare systems.

Learning Objective 1: After participating in this session, the learner should be better able to formulate strategies for user engagement, interface design, data flow and visualization, and workflow modeling for ePROs tools.

Learning Objective 2: After participating in this session, the learner should be better able to appreciate potential pitfalls and strategies for integrating ePROs in large healthcare organizations.


Elizabeth Austin (Presenter)
University of Washington

Cynthia LeRouge (Presenter)
Florida International University

Andrea Hartzler (Presenter)
University of Washington

Arlene Chung (Presenter)
University of North Carolina

Danielle Lavallee (Presenter)
University of Washington

Presentation Materials: