Stroke is a chronic condition and a leading cause of disability. After hospital discharge, patients need to transition into home-based rehabilitation, a long and distressful process. However, they are often ill-prepared to manage recovery at home; and many are socially isolated. There is a growing number of stroke patients who utilize social media platforms, YouTube in particular, to publish video blogs (vlogs) to make their stories heard and to share their rehabilitation experience. In this study, we analyzed 246 such YouTube vlogs to better understand this new form of patient story-telling and its value to vloggers, viewers, as well as healthcare professionals. We found that vlogging helps stroke patients overcome physical and speech constraints to self-journal, and to connect with other people online. Based on these findings, we discuss how future health systems may leverage vlogs to design self-tracking technologies, to generate patient health data, and to offer patient-centered education.
Learning Objective 1: After participating in this session, the learner should be better able to:
1) Understand the value of using vlogs as a self-tracking tool for patients with stroke;
2) Identify opportunities and potential issues of using vlogs as patient-generated health data;
3) Design patient-centered health education services that accommodate patient perspectives.
Yu Chen (Presenter)
University of California, Irvine
Kingsley Abel, University of California, Irvine
Steven Cramer, University of California, Irvine
Kai Zheng, University of California, Irvine
Yunan Chen, University of California, Irvine