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Description

The United States Preventive Services Taskforce recommends that primary care providers screen patients for an increased risk of carrying a BRCA1 or BRCA2 mutation and refer those who meet family history criteria to genetic counseling. Such screening requires detailed and accurate family history data, which often goes uncollected during a primary care visit due to time constraints, competing priorities, and lack of awareness on behalf of both patients and providers. In order to address these barriers and promote appropriate genetic counseling referral, we developed a user-centered framework that collects and communicates relevant data in order to prepare patients and their primary care providers for an informed discussion on genetic counseling referral. This paper describes this framework and the underlining data schema that makes it possible.

Learning Objective 1: After participating in this session, the learner should be better able to:
- Understand the importance of identifying women with a family history indicative of BRCA mutations in the primary care setting and the barriers that currently exist to doing so
- Understand how our team built a framework for collecting, analyzing, and communicating data to different stakeholders in order to address these barriers
- Understand the needs that remain to be addressed when implementing decision aids within clinical care and formulate an approach to meeting them

Authors:

Thomas Silverman (Presenter)
Columbia University

Gilad Kuperman, Columbia University
Alejandro Vanegas, Columbia University
Margaret Sin, Columbia University
Jill Dimond, Sassafras Tech Collective
Katherine Crew, Columbia University
Rita Kukafka, Columbia University

Presentation Materials:

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