Cystic fibrosis (CF) is a genetic disease in which dysfunction of a single protein channel leads to organ damage, resulting in chronic health problems and premature death. In the United States, medical care of individuals living with CF is delivered by Care Centers accredited and subsidized by the CF Foundation. CF outcomes have improved significantly through use of collaborative networks, registry data, and research. CF clinicians are perpetually challenged to assimilate and act upon large quantities of data generated by the care of these individuals. CF Foundation accreditation also requires Care Centers to enter patient-level data from clinical encounters into the CF Foundation Patient Registry (CFFPR). Commercially-available electronic health record (EHR) systems lack tools with sufficient context-specificity and ease-of-use to facilitate productive interactions between clinicians and patients. We describe a CF-specific note template built and implemented in an EHR which captures discrete data and simultaneously generates clinical documentation during ambulatory encounters. By conducting a pre/post study of its use at the Dartmouth-Hitchcock Medical Center Care Center, we found that the template can expedite note completion when clinicians have adequate time to become familiar with the tool. We anticipate that the note template will become a vehicle for delivering standardized, structured patient data to the CFFPR.

Learning Objective 1: Describe an implementation within the electronic medical record to both improve data entry and data registry efficiency.

Learning Objective 2: Describe how this registry data can be implemented into population health.


David Leander (Presenter)
Dartmouth Geisel School of Medicine, Tuck School of Business, The Dartmouth Institute Of Health Policy and Clinical Practice

Presentation Materials: