Patient engagement has been called the “blockbuster drug of the century.”1 While patient and consumer engagement concepts vary among different stakeholders, health care professionals and patients intrinsically understand its power. Over the last decade, patients and caregivers, along with their clinicians have employed connected technologies to enhance self-care and manage their conditions to better engage in their health and health care. Innovative use of technologies such as patient portals, mobile applications, and digital health services are enhancing communication, access to clinical records, use of medical reference information, participation in online communities, self-diagnosis, self-management, and tracking/sharing of biometric and other health information. However, the impact and adoption of these technologies for patient engagement have been limited by challenges including weak or conflicting drivers, technology silos, device and data incompatibility, information gaps, workflow obstacles, and policy or cultural conflicts.

This workshop, building on a popular tutorial given in the past by these presenters, will offer clinicians, system administrators, IT developers, policymakers, and patients (we are all patients, eventually!) examples of how these tools are used successfully to enhance patient engagement during a didactic portion of the workshop. Next, we will break into groups to discuss and problem-solve around two in-depth topics in participatory health: patient portals and patient-generated health data. After small groups discuss their own experiences, they will share insights with the assembled group. Workshop instructors will them summarize key learnings.

Learning Objective 1: After participating in this session, the learner should be better able to learn challenges and possible solutions in using patient portals and patient-generated health data to strengthen participatory medicine from a clinician and patient perspective.


Jonathan Wald (Presenter)

Daniel Sands, Harvard Medical School

Presentation Materials: